Born and raised in San Diego, CA I was diagnosed with Lupus SLE at the age of 23 in 2007. My diagnosis began with severe joint pain that doctors dismissed as carpal tunnel due to my young age. Only with persistence on my part to ask the doctors to test me for Lupus were the doctors able to find out I had lupus sle. Throughout my journey I have additionally been diagnosed with hyperthyroidism, asthma, diminished lung capacity, thyroid mass, neuropathy, Raynaud’s disease, anemia, high blood pressure, insomnia, and arthritis. I have under gone a kidney biopsy, surgery to remove half my thyroid, chemo therapy treatments twice for a total of six months, nerve testing, and yearly lung function tests. I have had an invasive right heart cath procedure done that resulted in me getting a blood clot near my lungs. I have had both pneumonia and shingles multiple times. I have experienced hair loss, tooth decay, skin rashes, skin ulcers on multiple body parts, multiple hospitalizations, depression, and muscle loss that resulted in me being wheelchair bound for a number of weeks. I have had to go through physical therapy to teach my self to walk again. I have been told by doctors that my body is shutting down and yet still by the grace of God I am here to raise my three children.
I have been living with lupus for 13 years now and refuse to let it bring me down. My favorite phrase is “she’s got lupus, lupus does not have her”. I extend an ear to listen when others want to talk without being judged, because I know the feeling of being alone with no one who understands. I understand and will always be open to talk.
In 2019 my friend Patty, founder of Hooper Mentality, gave me a platform to speak about my experience when she interviewed me about mental health. From that interview I decided to begin ShesGotLupus and my mission is to help others, not just with lupus but who also may be struggling with their own mental health.
I have been blessed with a supportive family and friends who encourage and motivate me through my journey.
As a lupus patient we can not anticipate how we will feel the next day, and it is helpful to know that no matter how rocky your health may be, they will still be there to help you up. We all need a support group and if you don’t feel like you have one, or no one understands, please don’t hesitate to reach out to me.
Contact me through social media: Instagram: shesgotlupus, Facebook: ShesGotLupus, Twitter: @shesgotlupus
Rosadela Durruthy is founder of She’s Got Lupus, a non profit organization aimed to improve the lives of those living with chronic illnesses by advocating for mental health, healthy living and raising awareness.