So a few years back I was hospitalized and doctors told me my body was shutting down due to a lupus flare up they couldn’t control. When my body began recovering I was still getting shortness of breath walking short distances, even just up a short flight of 10 steps, so I was referred to a pulmonologist. They performed pulmonary function tests and x-rays and I was diagnosed with diminished lung capacity due to scarring on my lungs. What I understand of this diagnosis is that during a lupus flare up, the lupus began attacking my lungs causing them to form scar tissue around my lungs. So the scarring around my lungs restricts my lungs from fully expanding and getting enough air..causing shortness of breath. At my last check up a year ago I was told my lung capacity was at 60%. At 35 years old I was given two options, have an invasive surgery to scrape the scarring from my lungs with no real guarantee that I would have full lung capacity or they told me I was a good candidate for a lung transplant because of my age. I’m sure the tears in my eyes when the doctor told me let him know I wasn’t ready to make any decisions so for now I just see my pulmonary doctor every 3 months with pulmonary function tests in between.
I still have shortness of breath so I do use an inhaler but I try to walk daily so I can attempt to maintain a healthy lifestyle and I keep telling myself I am building up my strength.
Unfortunately, thanks to my diminished lungs I am also far more susceptible to pneumonia and constantly have fluid in my lungs. I get pleurisy more often so when I get minor colds I have inflammation on the tissue around my ribs and it causes sharp pain around my ribs when I breathe.
Recently, I started reading about sea moss and it’s benefits for your body and considering the medical options I was given above, I feel like what harm could come from trying more natural remedies? I even found some one local who makes and sells sea moss gel. I just today used the gel in my tea this morning and I didn’t taste a thing but I’m very curious to see the benefits I may gain from continued use. In case you haven’t heard of sea moss and what it is or it’s benefits, sea moss is a type of red algae that grows on the Atlantic coastlines of North America, Europe, and the Caribbean Islands. It has potassium iodide, which is great for dissolving phlegm in clogged airways. It also rich in amino acids, vitamin C, antioxidants, as well as a host of antiviral and antimicrobial agents. These nutrients can help you to fight or ward off infections. So it is an anti-inflammatory (good for lupus patients) and expels mucus.
I’m curious to hear any stories of people who had similar lung problems or inflammation problems and use sea moss and any improvement they’ve seen? Make sure you subscribe to my blog or comment. I would love to keep in touch with the lupus community. My Instagram is ShesGotLupus
Rosadela Durruthy is founder of She’s Got Lupus, a non profit organization aimed to improve the lives of those living with chronic illnesses by advocating for mental health, healthy living and raising awareness.